Dear PsoProtect supporter,
We are so grateful for your ongoing contributions to the global psoriasis/COVID-19 registries, PsoProtect and PsoProtectMe. We are delighted to share our latest update - attached and copied below, alongside a plain text version.
PsoProtect - please continue to report any cases of suspected or confirmed COVID-19 in psoriasis
PsoProtectMe - please encourage your patients to complete the PsoProtectMe survey, whether or not they have had COVID-19
PsoProtect and PsoProtectMe Update - November 2020
PsoProtect - 557 cases reported
PsoProtectMe - 3143 surveys completed
The first PsoProtect analysis has been published, including 374 patients from 25 different countries.
Link to scientific research paper: https://www.jacionline.org/article/S0091-6749(20)31413-5/fulltext
Link to Psoriasis Association news article, including lay summary of the findings: https://www.psoriasis-association.org.uk/news/first-psoprotect-findings-released
ANALYSES IN PROGRESS
- We are collaborating with CORE-UK (partner patient reported registry in rheumatic disease) to investigate factors associated with shielding behaviour in patients with psoriasis and rheumatic disease
- We are looking at factors associated with worsening of psoriasis in the pandemic using the PsoProtectMe dataset
- We are pooling PsoProtect data with data from global registries in rheumatology (Global Rheumatology Alliance) and inflammatory bowel disease (Secure-IBD) to investigate COVID-19 outcomes across different diseases and treatment types
HOW YOU CAN HELP
We would be incredibly grateful if you could continue to use your networks to raise awareness of both registries by emailing your contacts and posting about us on social media (please follow and tag us @PsoProtect and use the hashtags #PsoProtect and #PsoProtectMe). The PsoProtectMe survey is now available in 9 languages (English, Spanish, Portuguese, Italian, French, Polish, Chinese, Japanese and Vietnamese).
Please let us know of other organisations in your country that could help us raise awareness of PsoProtect and PsoProtectMe to help us grow our network.
Feel free to contact the PsoProtect team with any queries: PsoProtect@kcl.ac.uk.
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